tag:blogger.com,1999:blog-6032510253556968391.post6983379528128191528..comments2023-03-21T05:40:45.199-07:00Comments on Gluten-free Kid: Getting the Coeliac diagnosis: I'm in A & E, they need to admit her...Anonymoushttp://www.blogger.com/profile/16899122975878734946noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-6032510253556968391.post-30366684163618520232013-06-06T07:41:49.358-07:002013-06-06T07:41:49.358-07:00Thank you, your comments have been of great comfor...Thank you, your comments have been of great comfort. We have now seen the dietician who was fab and very helpful and although Charlie is no better physically we have a more realistic expectation and understanding of his recovery and he is gradually starting to eat again albeit small amounts. What I really needed to hear is that his body will recover and he will get better even if it's going to take time. He managed a full day at nursery yesterday which is a big achievement and a welcome break for me! Thank you for accepting my friend request on FB I will watch out for your blog and let you know of Charlie's progress and the news of our new arrival! I am hoping to join a local parents support group in Surrey when life has settled a little. Best wishes, Emily xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-6032510253556968391.post-57662998956617283512013-06-02T07:03:42.106-07:002013-06-02T07:03:42.106-07:00Hi Emily,
I'm sorry you've had such a tou...Hi Emily, <br />I'm sorry you've had such a tough time recently and I hope Charlie starts to pick up soon. Once we started Alex on a G-F diet she seemed brighter within a couple of days. Her stomach took a good few months to go down to normal (I remember because her belly button had popped out and we thought she had an 'outie', when in fact it's an 'inie'!)Her energy started to increase within a week or two, and she was walking and running around (and into everything) within about 2 months- I guess it takes time for the muscles to rebuild and strengthen. We didn't have much diarrhoea before she was diagnosed, and once she went gluten-free, she only vomited if she actually had some gluten (initially,unfortunately, that was fairly often, as we worked out what to look for and where gluten might be 'hidden'!) <br />I wouldn't hesitate to keep going back to the consultant if the vomiting and diarrhoea doesn't stop soon though. I know of another child who was also lactose intolerant and that continued to make them sick when the gluten was cut out. <br />I know initially it does seem overwhelming, and you spend ages look at the backs of packets and checking ingredients, but you get used to it surprisingly quickly. <br />It must be so much more difficult trying to look after a sick child with a big bump and all that goes with it, you have my admiration and empathy!<br />I hope all goes well with Charlie's recovery and baby number 2. Please stay in touch if there is anything else you think would be helpful.<br />Best wishes,<br />JenAnonymoushttps://www.blogger.com/profile/16899122975878734946noreply@blogger.comtag:blogger.com,1999:blog-6032510253556968391.post-77290217559316165922013-06-01T14:08:21.629-07:002013-06-01T14:08:21.629-07:00Hi Jen,
Thank you for taking the time to write you...Hi Jen,<br />Thank you for taking the time to write your blog it has really touched me. My son, Charlie is funnily enough also 16 months and only last week we finally received the diagnosis of coeliacs. He has been been in and out of hospital all month and I have watched my bright baby disappear into a frail, scared, tearful and larthargic little boy. I'm also 8 months pregnant and have had the same conversations with the consultant about our second child's likelihood of having ceoliacs - and received the same patronising 'stop over worrying' answer! For us it is all very new and I feel completely overwhelmed by the road ahead. Charlie has been gluton free for a week now, but is still suffering with a distended tummy, lethargy and vomiting and diarrhoea daily I am told this will take a few weeks to see an improvement, but I wondered what your experience was in how long it took for Alex to get better? Thank you again and best wishes to you and your family. Emily xAnonymousnoreply@blogger.com